First of all, today was my last day of radiation. They made my treatment extra long, I think. I am really glad for it to be over with. Quite painful. My head is still scabbed up, itchy, bald and unattractive. Scott has been lathering on lots of aloe vera which helps for a few minutes. I know this is a milestone but it was hard to get excited about it for some reason.
Scott and Annabel and I had a great Thanksgiving at home together. Scott made white chicken chili and we watched some Disney movies on TV; Mary Poppins, part of Snow White and Sleeping Beauty. We didn't watch them all day, they were sort of just on in the background.
On Tuesday, I turned 37. It was a pretty good day. I wasn't sure how I would feel but I was pretty happy most of the day. Scott and I dropped Annabel off at school. It was their Thanksgiving lunch day. She wanted me to hold her hand to walk inside. That was very special for me because I don't ordinarily go in with her. At radiation, one of the ladies tried to give me a cupcake. When I saw my nurse practitioner, I got a chorus of Happy Birthday from she and the nurses. After school, Annabel brought me a handmade birthday card from her class. There were also lots of birthday presents and treats throughout the day. The only thing that went wrong was an attempt to go for sushi. We got there; sat down; I was too nauseated; we left. Scott picked up some Japanese hibachi instead. I threw up (at home, in the toilet). Other than that it was a really good day.
We had a small family celebration on Saturday for my birthday, our anniversary and Thanksgiving. Dad and Gail, Jeff and Suz, Kim and Karen were all here to celebrate with Scott, Annabel and me. I ate a ton of food -probably more than since I've been home from the hospital -including a slice of Magpie's cake. Yum. I hit the wall and then I hit the bed. It was great to have everyone here for a holiday. We had lots of good visiting and lots of good food. Unfortunately, Karen had to leave on Sunday. But I'm looking forward to seeing her again in December.
Next up is neupogen shots next week to boost my blood counts. We are still preparing for the PEG feeding tube though maybe it is still up in the air. I still lean towards not getting it but I will do it with the encouragement of my doctors. I have scans scheduled soon to check the cancer in my body. I have something else scheduled to check the level of cancer in my neuro system. Both those will dictate the next course of action. Other than that, I am just working on recovering which means mostly sitting in my chair. I'm starting to get antsy so I think that must mean that I'm getting better. My eyesight is still the same. Scott is working on some different ways to help me with the visual impairment since I'm not able to communicate via computer or text without assistance, can't drive. In general, I can't see, the TV, or anything else. This is probably the most frustrating part of my life.
I spoke with Shannon today about the benefit. I'm shocked by how much work is going into it, how many people are involved and how generous everyone is. I am touched. I am looking forward to seeing everyone.
www.hallraiser.com
http://www.handlebar-online.com/
No comments:
Post a Comment